Kuebelbeck / Davis A Gift of Time

Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief
Erscheinungsjahr 2011
ISBN: 978-0-8018-9909-6
Verlag: Johns Hopkins University Press
Format: EPUB
Kopierschutz: Adobe DRM (»Systemvoraussetzungen)

E-Book, Englisch, 0 Seiten, Format (B × H): 152 mm x 229 mm

Reihe: A Johns Hopkins Press Health Book

A Gift of Time is a gentle and practical guide for parents who decide to continue their pregnancy knowing that their baby's life will be brief.

When prenatal testing reveals that an unborn child is expected to die before or shortly after birth, some parents will choose to proceed with the pregnancy and to welcome their child into the world. With compassion and support, A Gift of Time walks them step-by-step through this challenging and emotional experience—from the infant's life-limiting prenatal diagnosis and the decision to have the baby to coping with the pregnancy and making plans for the baby’s birth and death.

A Gift of Time also offers inspiration and reassurance through the memories of numerous parents who have loved a child who did not survive. Their moving experiences are stories of grief—and of hope. Their anguish over the prenatal diagnosis turns to joy and love during the birth of their child and to gratitude and peace when reflecting on their baby’s short life.

Full of practical suggestions for parents and for caregivers, A Gift of Time also features the innovative concept of perinatal hospice and palliative care. Caring and thoughtful, the book helps parents embrace the extraordinary time they will have with their child.

Autoren/Hrsg.

Kuebelbeck, Amy

Davis, Deborah L.

Fachgebiete

• Sozialwissenschaften Psychologie Psychologie / Allgemeines & Theorie Psychologie: Sachbuch, Ratgeber
• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Medizin, Gesundheitswesen Medizin, Gesundheit: Sachbuch, Ratgeber
• Medizin | Veterinärmedizin Medizin | Public Health | Pharmazie | Zahnmedizin Medizinische Fachgebiete Palliativmedizin

Inhaltsverzeichnis

Introduction
1. The News: Receiving Your Baby's Diagnosis
Before the Diagnosis
Understanding Diagnostic Prenatal Testing
Receiving the News
The Immediate Emotional Storm
2. What Now? Making Decisions about Continuing Your Pregnancy
Facing the Decision
Options Presented
Perinatal Hospice and Palliative Care
Gathering Information
Sorting through Your Values
Making Decisions with Your Partner
Consulting with People You Trust
Deciding to Continue
3. The Emotional Journey: Grieving and Adjusting to Your New Path
Anticipatory Grief
An Overview of the Grieving Process
Evolving Emotions
Confronting Fears
Techniques for Coping
You and Your Grieving Partner
Your Other Children
Spiritual and Philosophical Aspects
Living in the Twilight of Death
Reclaiming Hope
Your Reorientation and Adjustment
4. Waiting with Your Baby: Settling in for the Rest of Your Pregnancy
Interacting with Others
Finding Support
Getting Appropriate Medical Care
Embracing the Time Remaining
5. Making Medical Decisions: Choosing Care for Your Baby
Researching Your Baby's Condition
Researching Your Baby's Treatment Options
Ambivalence about Medical Decisions
Seeking Outside Advice
Deciding to Wait and See
Opting for Hospice and Palliative Care
6. Getting Ready: Preparing for Your Baby's Birth, Life, and Death
Birth Planning
Wishes for after Your Baby's Birth
Including Your Baby's Siblings
Including Your Family and Friends
Other Practical Preparations
Preliminary Funeral and Burial Planning
Getting Closer to Birth
7. Welcoming Baby: Birth Experiences and Meeting Your Baby
Approaching the Time of Birth
When Birth Is Imminent
Meeting Your Baby
If Your Baby Lives after Birth
Taking Baby Home
8. Saying Goodbye: Holding On and Letting Go
Parenting Your Dying Baby
The Dying Process
Experiences with Babies as They Are Dying
Time with Your Baby after Death
Decisions about Your Baby's Body
Relinquishing Your Baby's Body
Funerals and Memorial Services
Your Baby's Final Resting Place
9. Continuing Your Journey: After Your Baby Dies
The Mother's Postpartum Recovery
Your Grieving Process Continues
Identifying Your Feelings
More Techniques for Coping
Regrets and Making Peace with Them
You and Your Partner
Your Other Children
Dealing with the Outside World
Subsequent Pregnancies
10. Reflections
Reflections on Your Journey
Spiritual Beliefs and Struggles
Long-term Reflections on Grief and Healing
Personal Transformation
If You Could Reach Back in Time.
Moving Forward with Gratitude
Appendix: Sample Birth Plan
Notes
Index

Über Autor(innen)

Kuebelbeck, Amy
Amy Kuebelbeck (ST. PAUL, MN) is a journalist with experience at news organizations including the Associated Press and the Minneapolis Star Tribune. She described her experience of continuing a pregnancy with a life-limiting prenatal diagnosis in her memoir Waiting with Gabriel: A Story of Cherishing a Baby’s Brief Life. She is the founder and editor of perinatalhospice.org and has presented and written extensively on the topic of perinatal hospice and palliative care.

Davis, Deborah L.
Deborah L. Davis, PhD (DENVER, CO), is a developmental psychologist, writer, and expert in neonatal medical ethics and perinatal bereavement. She is the author of Empty Cradle, Broken Heart and the coauthor of Parenting Your Premature Baby and Child. Her blog Laugh, Cry, Live explores a wide range of topics at PsychologyToday.com.

Amy Kuebelbeck, a former reporter and editor for the Associated Press, wrote about her experience losing a child in Waiting with Gabriel: A Story of Cherishing a Baby’s Brief Life. Deborah L. Davis, Ph.D., is a developmental psychologist and expert in the emotional aspects of neonatal medical ethics and perinatal bereavement. She is the author of Empty Cradle, Broken Heart: Surviving the Death of Your Baby.